Coverart for item
The Resource Beyond the pale : folklore, family, and the mystery of our hidden genes, Emily Urquhart

Beyond the pale : folklore, family, and the mystery of our hidden genes, Emily Urquhart

Label
Beyond the pale : folklore, family, and the mystery of our hidden genes
Title
Beyond the pale
Title remainder
folklore, family, and the mystery of our hidden genes
Statement of responsibility
Emily Urquhart
Creator
Subject
Genre
Language
eng
Summary
  • The story begins on St. Stephen's Day, 2010, in St. John's, Newfoundland, when the author gives birth to a baby girl named Sadie Jane who has a shock of snow-white hair. News of the child's icy locks travels across the hospital, and physicians and nurses from all wards visit the unusually beautiful newborn as she lies sleeping in her plastic bassinet. The maternity-floor janitor, however, feels something is amiss. Her eyes wide, incredulous and panicky, Emily asks, "Is she an albino?" The idea is immediately dismissed, but after three months of medical testing, Sadie is diagnosed with albinism, a rare genetic condition where pigment fails to form in the skin, hair and eyes. She is visually impaired and faces a lifetime indoors. She will always have the otherworldly appearance that drew the awestruck hospital staff to her side. A journalist and folklore scholar accustomed to processing the world through other people's stories, Emily is drawn to understanding her child's difference by researching the cultural beliefs associated with albinism worldwide. What she finds on her journey vacillates between beauty and darkness. She discovers that Noah's birth story is believed to be the first record of a baby born with albinism, and that the Kuna people in Panama revere members of their society with albinism, seeing them as defenders of the moon in the night sky. She attends a gathering of people with albinism in St. Louis and interviews geneticists, social scientists, novelists and folklorists in Canada, England and the US. But when she uncovers information about gruesome attacks on people with albinism in Tanzania, rooted in black magic, she feels compelled to travel to East Africa, her sun-shy toddler in tow, in an effort to understand these human-rights violations. While navigating new territory as a first-time parent of a child with a disability, Emily embarks on a three-year journey across North America and Africa to discover how we explain human differences, not through scientific facts or statistics but through a system of cultural beliefs. Part parenting memoir, part cultural critique and part travelogue, Beyond the Pale, as the title suggests, takes the reader into dark and unknown territory in the search for enlightenment. --
  • A journalist and folklore scholar describes her research into cultural beliefs associated with albinism after giving birth to a beautiful albino daughter
Summary
A journalist and folklore scholar describes her research into cultural beliefs associated with albinism after giving birth to a beautiful albino daughter
Tone
Assigning source
Publisher
Biography type
contains biographical information
http://library.link/vocab/ext/novelist/bookUI
10414073
Cataloging source
PLF
http://library.link/vocab/creatorName
Urquhart, Emily
Dewey number
616.5/5092
Illustrations
illustrations
Index
no index present
Literary form
non fiction
Nature of contents
bibliography
http://library.link/vocab/resourcePreferred
True
http://library.link/vocab/subjectName
  • Urquhart, Emily
  • Albinos and albinism
  • Albinos and albinism
Target audience
adult
http://bibfra.me/vocab/lite/titleRemainder
folklore, family and the mystery of our hidden genes
Label
Beyond the pale : folklore, family, and the mystery of our hidden genes, Emily Urquhart
Instantiates
Publication
Bibliography note
Includes bibliographical references
Carrier category
volume
Carrier category code
nc
Carrier MARC source
rdacarrier
Content category
text
Content type code
txt
Content type MARC source
rdacontent
Control code
ocn907641982
Dimensions
24 cm.
Edition
1st ed.
Extent
282 pages, 8 unnumbered pages
Isbn
9780062389169
Isbn Type
(Hardcover)
Media category
unmediated
Media MARC source
rdamedia
Media type code
n
Other physical details
color illustrations
System control number
(OCoLC)907641982
Label
Beyond the pale : folklore, family, and the mystery of our hidden genes, Emily Urquhart
Publication
Bibliography note
Includes bibliographical references
Carrier category
volume
Carrier category code
nc
Carrier MARC source
rdacarrier
Content category
text
Content type code
txt
Content type MARC source
rdacontent
Control code
ocn907641982
Dimensions
24 cm.
Edition
1st ed.
Extent
282 pages, 8 unnumbered pages
Isbn
9780062389169
Isbn Type
(Hardcover)
Media category
unmediated
Media MARC source
rdamedia
Media type code
n
Other physical details
color illustrations
System control number
(OCoLC)907641982

Library Locations

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      30.271302100000 -97.746016800000
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